PKU shapes more than diet. This June 28, on PKU Day, we’re talking about the mind.

June 28th is International PKU Awareness Day, dedicated to raising global awareness about life with Phenylketonuria, a rare inherited condition that demands a lifetime of strict dietary discipline.

Each year, the day takes on a new theme, a different lens for understanding what living with PKU really means. It exists to amplify the voices of patients and families, helping the wider world understand the daily realities, triumphs, and hurdles that come with the condition.

For 2026, the spotlight turns somewhere it rarely gets to go. Because beyond the meal plans and lab results, there's a side of PKU that's harder to measure and even harder to talk about, one that touches people’s minds, how they feel about themselves and how they move through the world.